"A Must Read book
for all CKD patients"
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Meet The Author


For all of those who know what it is like to manage an illness. The one thing I have learned through my illness is not to be ashamed of who you are. You did NOT choose to be sick but you are sick and you need to deal with it. There is a lot of pain, sadness, guilt, desperation, but we are strong enough to get through. .

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Chronic Kidney Disease

Life After Diagnosis

All new kindle edition is available for Download now. It's time to stop worrying, get ready to deal with you diagnosis and start live your life as happier

 

Why Read This Book?

6 Reasons To Read This Book

 
 

 

HOW TO COPE WITH YOUR CHRONIC DISEASE

  • Join a support group ASAP. Don’t cut yourself off. Online kidney disease support groups are easy to find. Type chronic kidney disease into your browser box and lots of support groups will pop up. Shop around for a group – or groups - that provide a safe place to talk, encourage you to ask questions and where you can get reliable information.
  • Avoid whiners and negative people. You have enough “Why me?” of your own to deal with.
  • If you smoke, stop.
  • Eat right. Get help from a registered dietitian.
  • Take your meds.
  • Find ways to reduce stress and make them regular parts of your life. Rethink your obligations, consider meditation, etc.
  • Get to and maintain a healthy weight.
  • Move more. Endorphins are good. Try to exercise at least 30 minutes a day, every day.
  • Do things that make you happy. Take walks, pursue a hobby, read to kids, learn to meditate, try tai chi, etc.
  • Add a mental health professional to your team. I’m serious. And I’m a guy. Consider someone who practices family therapy and/or cognitive behavior therapy and/or is knowledgeable about chronic illness.
  • Allow yourself to go through the entire grieving process.
  • Expect your sense of yourself to change.
  • Thank all those well-meaning people who tell you about the latest, greatest cure for kidney disease they just heard about. Don’t bother arguing with them. Sometimes they actually let you know about something you might want to talk to your healthcare team about.
  • Know that it’s normal to deny your diagnosis. However, facing your diagnosis head on is the best way to cope.
  • Know that depression, pain and helplessness are normal CKD challenges. You can do something about them.
  • Write down all your questions and discuss them with your healthcare team. Keep asking until you get useful answers.
  • Be kind to yourself. It takes time to incorporate chronic illness into your life.
  • Find out about palliative care.

 
 

Lifestyle Changes That Will Help


People with chronic kidney disease can have healthy marriages and meaningful relationships. They can fall in love, care for families, and be intimate. Staying intimate with those you love is important.

Intimacy includes many things, including touching, hugging or kissing. It reflects how you feel about yourself, how well you communicate, and how willing you are to be close to someone else.

There are many things that can affect your range of intimacy if you have kidney disease, including hormones, nerves, energy levels, even medicine. But there are also things you and your healthcare team can do to deal with these changes. Don't be afraid to ask questions or get help from a healthcare professional.

For some people, having kidney disease may cause physical changes that make them feel less attractive. Feeling worried, anxious, or depressed is normal when faced with a serious loss such as kidney disease. These emotions can cause loss of energy and lower interest in many activities.

You’ll feel better if you incorporate these activities in your everyday life: practice relaxation techniques, stay physically active, stay on your diet and lead a healthy lifestyle.

Identify what’s really important in your life. let go of what isn’t important and what you can’t change.

Don’t think for a moment that life is steady. A dialysis session can knock the stuffing out of you. You Never know what I’m going to have to overcome from one day to the next.

No matter what happens, make a choice every day. You can be a victim and lose yourself in self-pity or you can decide to put on your big boy pants and help yourself by helping others.

Somewhere along the way, I promised myself to try to face every new challenge fearlessly – no matter how afraid I was. I started to take an active role in my treatment. As I learned to advocate for myself, I also learned to advocate for others.

The process helped me discover internal strength and determination I didn’t know I had. I found myself part of a community that’s committed to revolutionizing CKD treatment. I don’t know what your purpose is. I just know one of the best ways to combat this disease is to have one.

When you have a purpose, you have something bigger than yourself to care about, a reason to find and direct your energy and to get up in the morning. Having a purpose, having something that’s truly important to you and that you truly care about, keeps you from falling into that ever waiting abyss of self-pity and despair. I believe it keeps me alive.

How to pay for anything connected to chronic kidney disease is one of the murkiest topics of all. Unfortunately, there’s no one size fits all. There are also no easy answers. In fact, I resisted writing about it at all because it’s complicated and keeps changing.

Here’s the skinny. Don’t try to figure this out on your own. Our current healthcare system is a mess. Whenever there’s a change of any kind, no matter how small, it usually gums things up even more. I doubt that the people who make decisions that affect us have any idea how difficult the system already is for us to navigate.

In addition, the people who have been assigned to provide information and help us figure out how to make the system work for us often don’t have a clue. If they have any information, it’s often incomplete and/or incorrect.

I have payment issues all the time and I’m actually in a pretty good place. In spite of being tethered to a dialysis machine for too many hours three days a week, I’m still able to work. My employer has made it possible for me to work from home, for which I am extremely grateful.

Most of my treatment is paid for by my employer’s healthcare insurance and Medicare. As you can imagine, I’ve had this payment arrangement for years. Yet, I still have arguments with Medicare and my company’s insurance all the time. Make sure to

1. Get reliable financial information 2. Talk to your private insurance carrier 3. Call the American Kidney Fund for financial aid

Here’s an absolute rule: chronic kidney disease patients MUST follow their diet plans. Period.

Kidney friendly diets limit the amount of work your kidneys must do and provide you with the nutrients you need.

Your diet plan will change from time to time. What’s okay for some people at stages 1 through 4 can be life threatening for people at stage 5.

Do not try to figure out a kidney friendly diet on your own. There are too many variables to consider. You need a skilled professional, a registered dietitian who specializes in chronic kidney disease, to design a balanced diet specifically for you – a diet that’s tasty and healthy, which is not always the easiest combination to find.

I’m appalled when I read social media posts from newly diagnosed CKD patients or their caregivers who leave their doctors’ offices without any information at all about what to eat and drink or referrals to registered renal dietitians.

read the recipes in “Renal Diet Plan and Cookbook: The Optimal Nutrition Guide to Manage Kidney Disease” by Susan Zobheib, RD, LDN Click Here.It’s useful for any stage of CKD. There are excellent resources on the National Kidney Foundation and American Kidney Fund websites.

Add a dietitian who specializes in CKD to join your healthcare team as soon as possible.

Ask your primary healthcare provider or nephrologist for a referral. You can also search the Academy of Nutrition and Dietetics online directory to find renal dietitians near you.

While you’re waiting for your appointment with a registered CKD dietitian, start incorporating the guidelines from the National Kidney Foundation, the National Institutes of Health and the Mayo Clinic into your diet.

At 5 a.m. most mornings – usually after a night of CKD-induced insomnia - I drag my exhausted body from my bed to my special spiritual spot in our home. I practice my own brand of meditation. It has given me the freedom to make mistakes, to choose life and joy. It relieves my pain and negativity.

I turn on our Zen light and listen to the gentle sounds of the ocean, nature, wind, a bubbling brook. Sometimes I light a candle or listen to our buddha water fountain. I position myself on the meditation mat and focus on my breathing. I repeat a daily affirmation.

I’ve learned so much. I’ve realized that prejudice has no place in the world. Whether bias comes from ignorance or indifference, it is not acceptable. I’ve realized that dialysis patients are not handicapped by our disease. We become handicapped when we decide not to embrace the disease and its influence on our minds and bodies.

Mindfulness meditation CAN GET YOU THROUGH so many distasteful parts of my disease. It has gotten me through surgery after surgery, test after test and given me a sense of calm during a particularly unpleasant dialysis session. A great book is Meta Human

What My Readers Have to Say

  • Very Useful book that bought. Helped me with lot of new insights on Kidney problems.
  • Brilliantly written book. I have chronic kidney disease and Jeff explains everything as per real world. Really helpful.
  • Worth reading! Jeff makes everything easy and helped me to go through my illness with ease.
 

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